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Butler for ALL (Acute Lymphocytic Leukaemia)
ROLE: DESIGN LEAD, RESEARCHER
July 2021 - Present
Project completed in ABC Community with Aurora Zhang
ABOUT THE PROJECT
A Digital Product that Simplified and digitalized family disease management of Leukemia patients
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Makes patient family's life easier by simplifying their routine task -- tracking patients' symptoms by providing task scheduler, reminder and data input voice input.
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Utilizes digital analytics to visualize the symptoms data and highlight abnormal data.
I did this project as a volunteer with the ABC Community, which is a commonweal organization. After we decided to do something for the Leukemia patients, we also cooperate with the Xiaobai Chuntian, which is another commonweal organization for pediatric hematology.
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Current CHINESE situation in the field of Critical Illness Relief
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The number of medical consultations is fluctuating, major medical assistance is concentrated in specific diseases, and the per capita income cannot match the average expenditure on major diseases.
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The basic medical insurance is close to full coverage, and the drugs required for major diseases are gradually added to the Medical Insurance Catalogue, but the medical insurance system for major diseases is still in the preliminary stage.
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Regional differences in medical resources are large, with more in the east and less in the west, and the settlement of medical treatment in different places and the graded treatment system are still in the initial stage.
DOMAIN STAKEHOLDERS
Government
Promote the development of professionalism in the field of critical illness relief through policy formulation, industry regulation, public services, etc.
Enterprises
Mainly provide assistance in the form of insurance, drugs, equipment and financial support.
Medical Institutions
Mainly participate in critical illness relief by providing professional treatment.
Commonweal Organizations
Mainly provide financial support, but also play a role in service, information, product demand, making up for the pain points and deficiencies of the government and enterprises.
STAKEHOLDER RESCUE MODE
Money-Based
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Patients proactively contact the foundation and launch a crowdfunding project on an online platform to raise donations from the public.
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The foundation set up a special fund and took the initiative to seek patients.
Information-Based
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Commonweal organizations build online communication platforms to promote popular science by linking doctors and volunteers.
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Commonweal organizations joint government, community, hospital, and school to promote popular science education and disease screening activities.
Service-Based
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Commonweal organizations ecruit professional medical worker to provide psychological diagnosis and counseling services.
Commonweal organizations rovide employment training for patients and cooperate with enterprises to solve the re-employment problem of patients.
Product-Based
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Commonweal organizations work with companies to provide commercial insurance products for the disadvantaged with critical illnesses.
Commonweal organizations cooperation with pharmaceutical companies and local volunteer teams to provide pharmaceutical assistance for the patients.
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Commonweal organizations work with hospitals to provide educational programs for chronically hospitalized children with serious illnesses, as well as psychological counseling programs for their families.
Policy-Based
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Commonweal organizations push the government to include the cost of treatment and drug reimbursement for a particular disease in the national health insurance.
SUMMARY OF THE CURRENT CHALLENGES
Institutions
Industry
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Fundraising Issues
- Few fundraising professionals in institutions and relatively single fundraising channels.
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Funders tend to prefer short and quick relief, resulting in an imbalance of funding/medical resources available for different projects.
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Manpower Problems
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Insufficient manpower; it is common for one person to be in charge of multiple projects; difficulty and high cost in recruiting staff.
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Lack of professional volunteer management system and management talents; the vetting process and training process of volunteers become difficult.
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Lack of inter-industry linkage
- Lack of cooperation among industry organizations.
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Lack of unified assistance and screening criteria.
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Lack of patient awareness
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Patients' awareness before and after illness is insufficient, and their focus is mainly on raising money for treatment, and they are not aware of the service and information type of assistance.
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High homogenization of project
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Financial or resource assistance is the majority, while service assistance is significant but slow to develop
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The social awareness of community health worker is low.
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Narrowing down the problem scope
PROBLEM ANALYSIS
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Large number of patients in need of rehabilitation treatment.
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Lack of rehabilitation specialist hospitals and beds.
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High demand and low supply for caregivers.
Number of Rehabilitation Hospitals in 2018
Number of
Rehabilitation Departments in 2018
Number of Beds in Rehabilitation Departments in 2018
CHALLENGES
There is a serious lack of rehabilitation knowledge and rehabilitation caregivers currently provided in the home care phase of the critical illness field.
ACCESSIBILITY
Difficult
Rehabilitation Hospital
Rehabilitation Department
Rehabilitation
Center
Care
Center
Nanny
Center
PROFESSIONALITY
Low
High
Easy
USERS
Patient's Families: They have the most direct access to patients, they have the most urgent needs, and they have more autonomy and ability to seek help than patients.
WHAT IS THE OPPOTUNITY?
Typical scenario/behavior in reality:
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Target user: giving rehabilitation treatment to relatives, acquiring limited rehabilitation knowledge through the internet, doctor, relatives, friends or other patients.
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Learn and self-digest these rehabilitation knowledge, and then practice what they have learned.
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Rehabilitation treatment is a long-term process, so it is a cycle of learning and practice.
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Limited energy, need to find a caregiver.
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Limited number of caregivers, hard to fins a suitable one.
Opportunities:
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Availability of convenient and efficient channels to obtain authoritative and credible knowledge about rehabilitation treatment.
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The problem of proper learning and application of rehabilitation therapy knowledge.
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Whether the problem of low number of caregivers can be solved
User Journey Map
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Research & Product Goal
We conducted 5 interviews including Leukemia Doctor, Child Charity Specialist, Director of Leukemia Patient Organization and patient families.
FINDINGS
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Parents need to track complicated symptoms
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Complained about the discontinuity from in-hospital detailed and digitalized record to family handwriting, arbitrary tracking
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Diagnosis often struck family with no time to accept, learn and react properly
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Certain medication could lead to insufficiency of Calcium, need special recipe to increase Calcium
Improve the voice recognition accuracy
Provide personalized disease management scheduler and nutrition advice depending on treatment stages
Visualize symptom data trends to provide better track of the patient's situation
Keep and organize the medical reports and diagnosis history from different hospitals
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Prototype
DAILY RECORD - SYMPTOMS LOG
Clearly visible "disease stages” and time.
We plan to have three different recording modes: chemotherapy, post-transplant, recovery
The "completeness of records" score motivates family members to complete each small indicator of the record.
Users who complete 100% of their records for 10 consecutive days will receive a free one-on-one consultation with our nutritionist.
Important post-transplant sympthom data is visible at a glance. If not recorded, the most recent data is displayed and the task is shown as incomplete. Tap to perform manual data entry.
Automatic categorization and storage of information under appropriate items through voice recognition.
If the time and location is not specified, it will be saved to today and the detected location by default
You can choose to re-enter the information by voice if it is incorrect, or edit the existing information
Or click on the microphone to use voice input.
DAILY RECORD - MEDICATION REMINDER
The home page shows all the medications you need to take and all the tests you need to do that day. Cell phone reminder function can be used to send push on time. Tap to change the dosage and time.
RECORD HISTORY
MEDICAL EXAMINATION REPORT
Image recognition and cross-institutional integration